A faulty aortic valve isn't something you want to have considering that it helps blood flow out of the heart and through the rest of the body. This have affected my son psychologically since he loves playing soccer what should I do. From afar, I dont have much to add. My son is desperate to be able to play sports without any restrictions. In general, the larger (in diameter) the substitute valve is, the less aortic stenosis it will produce. It usually consists of three flaps of tissue what are called valve cusps. I have also had a stress test, which showed no issues at all. Its probably not possible to have too much information as you think about your situation. Hey is almost looking forward to getting it fixed. I am playing basketball I am doing 100m and 200m and swimming . Bicuspid Aortic Valve - Cleveland Clinic I am a 48yo competitive cyclist who is very concerned with being able to return to my former ability to hit high effort levels following open heart surgery. I would prefer not to stop. Your doctors will be in the best position to offer advice because they will be most familiar with your case. Now I wanted to start again (also due to the 8kg I accumulated in the meanwhile:( ) and I discovered that I can barely run 5K in 30 min and I generally find it very difficult to run. He would be devastated to never be able to play again. My doctor says i use losartan for decrease my blood presure. Some people with bicuspid aortic valve will have symptoms in early childhood. You would never know meeting these celebrities that they had a CHD. My cardiologist (London Heart Hospital) gave me green light to moderate sport activities (no marathon and weight lifting). The confusing thing I hear is some cardiologists telling BAV people not to life over x lbs. Some cardiologists tell me that I can run up to 130 beats per minute ; others say theyd prefer I do power walking because pressure always rises while running. Should I stop jiu-jitsu as it is a mix of anaerobic exercise (which I hear is bad) and aerobic exercise (which I hear is good)? Or, is it something that can wait until they get sports physicals in their teens? He was forced to stop playing football at 11. There is recent interest and experience with aortic valve repairinstead of replacementfor patients with BAV. They are located between the atria and corresponding ventricle. Or usually lead a normal life? Ive been told by my cardiologist that they think I should probably avoid competitive rowing and weight lifting. Editorial Review: Andrea Cohen, Editorial Director, Baldwin Publishing, Inc. All they said is dont really do weight where you can feel the strain in your neck ?!? Biscuspid Aortic Valve with trivial AR Sory but I dont speak very vell english. They are able to see my son this Friday, which i am much more comfortable with! Almost half of BAV subjects develop different degrees of valvular dysfunction during their lifetime. host, 76, suffered a mild heart attack in 2012. I am 18 now, and I am interested in weight lifting. Bobbie. I ran a 1/2 marathon 4 months after my surgery and have been since training for the Philly FULL marathon, which is tomorrow. Throughout the years he has played football and basketball. Barb. I have been doing this for the last 5-6 years now and am hopeful it can continue. Having a congenital heart defect means you are born with a problem with the hearts structure. Thank you so much for your clear explanations. Thats an issue to pursue with your sons doctor(s). No LV chamber chamber dialiation, normal LV wall thickness, good LC systolic function, No regional LV wall motion abnormality. My cardiologist tells me that I need to be monitored yearly and that I should exercise without limitation (for cardio) I have symptoms however that include chest pain and shortness of breath and palpitations. I agree that its somewhat surprising that more detailed information isnt available. The average lifespan for a cow valve or pig valve is about 10 to 15 years, according to the Cleveland Clinic. I do not have Julys echo results yet. Maybe thats not surprising, given that Im a heart surgeon and that many individuals with BAV need operation at some point. Hey has been physically active with restrictions of no contact sports, and no isometric exercise. Consensus guidelines suggest that (athlete) patients with BAV and moderate enlargement of the ascending aorta should curtail their strenuous static (eg, weight-lifting) and endurance sporting activities because of the risk of aortic rupture or dissection. Instead, even with continued sports participation, the progression of both valvular and aortic disease is no different from that in the general population. I am now down to seeing my doctors every 3 years or so and have been doing very well. Regards Im just going to do my very best to stay the course and have annual echoes to track my valve. I feel fantastic and have already been walking the streets of Cleveland enjoying your amazing statues. Probably a bicuspid aortic valve but there are many other possibilities Reply My cardiologist has advised that while marathon running is out, shorter runs (up to 6-8 miles) and pilates are both fine for now. To list down the names of celebrities including entertainers, musicians, politicians, TV personalities, sports figures, etc. Hi Larry, We have got two completely different opinions from our cardiologists: 2 Such features need to be considered before surgical intervention. Some information about myself: Im 28, 186 cm, 77 kg, max pulse 194, rest 50 bpm, live in Russia. Apologies for my slow reply. no tiredness, no dizziness, etc. Thanking you in advance, Brave Dublin teen Sinead fights back from heart surgery to make beloved I too would be interested in talking off-line about what I have experienced or finding docs who have studied more extensively at fine-tuning high performance engines. My cardiologist has advised me to avoid high impact activities such as weight lifting and endurance training. Context Bicuspid aortic valve is the most common congenital cardiac anomaly in the adult population. He isnt interested in anything else. That post is a starting point for todays discussion. Easy bicycling might work, but I suspect that running wont be workable with that cap. Its really not strenuous, maybe 10 km/h and not more that 10 push ups at once. Our only tool to keep track of aortic enlargement is repeated measurements with CT or echo. Something they suspect is also from birth but never previously picked up. I am a competitive cyclist, neither the Cardio or my Doctor said I should not be racing bikes anymore, does that sound reasonable to you, my doc did say to monitor the aortic root size yearly. The abnormal anatomy of the bicuspid aortic valve is complex, and a classification schema of 3 anatomical types has been proposed by Sievers and Schmidtke. I would like nothing more than to have this repaired so I can return to my lifestyle, I cant understand why I cant have it fixed as it is my choice to have surgery. The important considerations in athletes with BAV are the degree of regurgitation of the valve and the degree of enlargement of the aorta. with an efficiency of 69%, I have an appointment with a specilaist next week and am just wanting some, even if vague, answers. Kimberly has experienced heart valve disease firsthand. They all cause a small bit of obstruction to blood flow as it leaves the heart. It doesnt help that I am a nurse. However, I always performed poorly when it came to the top end fitness tests e.g. Im wondering if you can advise me. This gives a chance for the sternum, which was split during the operation, to heal completely. Perhaps the doctor could contact the specialist and request an earlier appointment, if that made sense. O'Donell took the aspirin recommended for people who think they are suffering a heart attack just in case, but didnt call 911. Zdenko . Frontiers | Transcatheter Aortic Valve Implantation in Sievers Type 0 The only prudent course is to have periodic follow-up imaging to keep track of size/growth. Abstract. Bicuspid aortic valve (BAV) is a heart problem present at birth and the most common congenital cardiac anomaly, with an estimated incidence of 0.5 percent to percent in the general population. Join Vanity Fair to receive full access to VF.com and the complete online archive now. Aortic dilatation is a common feature of BAV with a prevalence ranging from 20 to 84% , due to differences in assessment techniques, study population, aortic size thresholds, and heterogeneous nature of the . Search for heart hospitals that specialize in heart valve treatment. Im a 29yo CrossFit addicted man who just found out I have BAV while applying for the defence force here in Australia. Background: Transcatheter aortic valve implantation (TAVI) has achieved satisfactory outcomes in the selected patients with bicuspid aortic valve (BAV), predominately type 1 BAV (~90%). You can contact me on zdenkokosutic@yahoo.com. Again, there are ACC/AHA guidelines for when operation is needed: Sometimes more than one indication for operation may be present, so there is the additional guideline for patients who need operation for aortic stenosis or regurgitation: I know from discussion with athletes over the past few years that there are differences of opinion among cardiologists and heart surgeons about these guidelines. The doc says the big risk is due to the blood thinners. I know what theyre saying and after that I know that I have mixed feelings because I feel depressed about not being active like I used to be, but then I feel selfish as I am not being grateful. There is a risk of sudden death in individuals with BAV, probably related most to aortic stenosis or aortic dissection/rupture. Hi, Fantastic website, there is very little actual information on this on the web. In the simplest terms, a bicuspid aortic valve can be a serious heart valve disorder in which the valve only has two leaflets, or flaps, that control blood flow through the heart. She's currently spreading the word about the AHA's partnership with CVS' MinuteClinics for free heart health screenings every Thursday in February. Today at my hospital, we do most 1st time aortic valve replacements for aortic stenosis (narrowing) this way and have started using TAVR for patients with previous AVR using tissue valves who need re-replacement. My Echo Stress Test is normal but when I finish obviously the pressure is higher (190-80 at the end) . I have no symptoms that I would notice, e.g. This can lead to stretching apart of the valve leaflets and leakage at the valve, known as regurgitation. And my doctor do not give me responsive and exact answer to my questions regarding sports. . I have question about your opinion about aortic valve regurgitation (no BAV) I would really like for people to not have to experience what I had to experience, she continued. Here are some celebrities that experienced severe heart valve defects and had to have either heart valve replacement and heart valve repair surgery. At my last evaluation, my aorta measured between 4.3-4.5 cm, depending on where the measurement was taken, and the regergitation was classified in the moderate range. Always best to heed the advice of your doctor(s) who will be in the best position to offer advice about safe forms of exercise. Shes quite the athlete. If a large enough valve is implanted, there may be no noticeable impact on the ability of the heart to do extra work that comes with running (or any exercise). When there is narrowing (stenosis) or leakage (regurgitation) of the aortic valve, the heart must do extra work. Sheer brutality and trauma caused Myasthenia Gravis. In fact, in some people they can go undiagnosed for years. My performance as a cyclistgiven my ageputs me in the elite category, although with the stenosis I am experiencing a definite decline in performance. I have read that strength training is beneficial for heart health. Danny. For healthy individuals who have BAV with no other heart or aortic problems, follow-up imaging with echocardiogram and/or CT could probably be undertaken annually, or perhaps less often once stability is ensured. On Aug 30, 2017 I passed out at the gym and subsequently airlifted due a large abscess and valve dehisence and underwent another operation and now have a homograft. Pathology. 2; My heart seems to heal, so that speaks well for my future.. Dublin teen to compete in Irish Dancing World Championships after heart If the valve is smaller than needed, there can be a limit to the ability of the heart to do extra workand that can show up as less speed. I did cardio training 3 times a week and weight training twice a week for 60 years. "I had been doing some work around the house working with a heavy ladder, he told PEOPLE of his activity in the days leading up to his heart attack.
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